Help needed to develop and test a digital monitoring platform for people with lived experience of psychosis

13 April 2022

The McPin Foundation, a mental health research organisation, is working on research to understand how to predict and prevent relapse of psychosis using a digital monitoring platform, which will include a smart phone app.

Current methods of monitoring and assessing psychosis involve face-to-face meetings that rely on people recalling their symptoms and issues. At present, the mental health of many people living with psychosis is not being looked at often enough. This means that the warning signs of people becoming unwell can be missed.

The new programme of research involves the development and study of a digital monitoring platform to monitor people’s symptoms and experiences of psychosis. The hope is to see if using the app can identify signs that someone may be becoming unwell.

How long is the study and where will it take place?

The study will take place over four and half years in Manchester, Edinburgh, Glasgow, Sussex (Brighton), London, and Cardiff. 

Some meetings will be held in person. The location of the meetings will vary.  Some travel will therefore be needed across the country. They will also consider people who live anywhere in the UK for the wider study ‘Involvement Network’.

Who are they looking for to take part?

They are looking for people with lived experience of psychosis.

The group will meet around five times a year. There will be some tasks in between meetings as well.  They are also looking for a wider network of people who could be involved on a more ‘as and when’ basis. This ‘Involvement Network’ of people will not be invited to attend meetings but will be asked to respond to occasional email requests for advice. For example, testing the new app, or giving feedback on a summary document.

Mental health problems and experiences affect everyone, but involvement in research does not always reflect this. Therefore, they are actively seeking applications from Black, Asian and Minority ethnic groups. They would especially like to hear from those who have experienced difficult life experiences (for example: seldom-heard groups and low-income backgrounds).

They would also like to hear from people who have not had the opportunity to be involved in research before.

Payment

Payment of up to £80 will be offered for online meetings (dependant on the length of the meeting). Payment of £100 will be offered for in person meetings.

Payment will also be offered for tasks to be undertaken in between meetings or by email.

All reasonable travel expenses for in meetings will be covered. They will also try to help in case anyone does not have suitable computer/phone or data to take part in online meetings.

How to apply

Please complete the application form and email it to Alex Kenny.

Alex Kenny email is: alexkenny@mcpin.org

If you are unable to fill our the application or if you have any questions, please email Alex Kenny or phone: 07518 110 129.  


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